what the heck do we think this is about? and is home birth a way around it, i wonder...?
infowars.net/articles/ma...20507DNA.htm
infowars.net/articles/ma...20507DNA.htm
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Re: infant DNA collection -- wtf?!
Mon, May 12, 2008 - 10:07 PMwell, if i wasn't thinking about a home birth before......... -
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Re: infant DNA collection -- wtf?!
Tue, May 13, 2008 - 6:29 AMJeezuz.... this is FRIGHTENING. Canada is starting to look really good about now......
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Re: infant DNA collection -- wtf?!
Tue, May 13, 2008 - 10:40 AMActually, after reviewing the lettering of the bill it looks like the article is a little bit of hyperbolic fear mongering. there's nothing in the bill about a mandatory DNA bank, nor about taking samples without consent.
What it does talk about is increasing the number of diseases scanned for, largely related to the reluctance of insurance companies to cover the expenses. I've got a doctor friend looking into it, but he seems to think that the review of the article is completely out of context. I wouldn't start packing for Canada just yet.
(also, i have some friends who've just returned from Canada, because that found that no matter how fucked up it is here, it's not less fucked up there, just in a different way) -
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Re: infant DNA collection -- wtf?!
Tue, May 13, 2008 - 11:21 AMokay, so put my mind at ease. i asked you about this in pregnancy tribe. it does seem like this is the START of genetic testing on infants, not an expansion of genetic testing already in place. and it does seem like it will be done to every child -- certainly those born in hospitals -- without consent. because it is to be done to every child, we do not have a right to refuse it. whereas, for eg, b/c i am 38 the clinic where i go for prenatal care asked me if i wanted to be screend for a down syndrom pregnancy. and in fact they HAD to ask. and when my numbers came up funny, they HAD to ask me if i wanted amnio to know defnitively what was going on. and i had a right to say NO. but the right i have on behalf of my unborn child, it seems, i do not have on behalf of my newborn. or are you understanding this differently somehow? -
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Re: infant DNA collection -- wtf?!
Tue, May 13, 2008 - 11:55 AMAt the hospital I went to you have to sign a consent form for them to NOT use your spare parts and pieces as part of a collection the government is doing. Scary. I asked for my placenta and cord, and got neither. I think the midwife just wasn't thinking, but I also feel cheated. -
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Re: infant DNA collection -- wtf?!
Tue, May 13, 2008 - 5:24 PMWhatever this is... it certainly seems like a VERY slippery slope...
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Re: infant DNA collection -- wtf?!
Tue, May 13, 2008 - 10:15 PMI'm concerned about the source of this article; it seems more fear-based than informative as a whole.
I don't have the time right now to thoroughly read the text of the bill, so I will look forward to hearing what your friend has to say, Delta. If it is just expanding the newborn screen without allowing insurance intervention, I'm all for this.
Newborns (born in hospitals, birth centers and homes) are currently screened soon after birth for a number of genetic diseases such as sickle cell anemia, pku and thyroid problems. It varies from state to state which diseases are include in this screening, but the negative impact of many of them can be greatly limited by early detection. I think it would be a shame for people to refuse this potentially life-saving screening panel for fear that a nefarious DNA bank would be started. -
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Re: infant DNA collection -- wtf?!
Wed, May 14, 2008 - 9:20 AMThe second response from another doctor was more of the same, talking about how the article is a bit overblown. The language does allow for the collection and analyzing of DNA. This isn't a new thing actually, there have been several projects that have collected DNA. Part of what she said was "The question is what will the parents sign away their childrens' rights to? All parents will have to sign a consent form.
If the consent form is broadly written, then the DNA can be used for anything. If the consent form is specific to metabolic disorders, then
doctors and researchers must show proof that they are working on metabolic disorders to in order to access the data"
So it's really about being an informed parent, asking specifically what any tests are for, what will happen to the samples and being aware of the possibilities. I have noticed that the articles on that particular website seem to be a bit overblown and take things to their baby-eating extremes, (Swift reference) with the result that folks get stirred up in a panic before reading the primary sources. -
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Re: infant DNA collection -- wtf?!
Wed, May 14, 2008 - 12:21 PMi hear what you are saying. so they think parents will definitely be asked for consent?
i have a lot of thoughts and questions about genetic testing. while i know it can be a boon to humanity, my most recent brush with it was around screening for down syndrome babies. what i came away with was, well, a lot, but in the end two things really stick with me: 90% of people who know they are carrying a down syndrome child abort and many of those seem to tell friends and family they miscarried. having gone through the mill of getting sent for genetic counselling and doing the level two ultrasound and being assured that even if my amnio results weren't back till after the 24-week cut off i could be sent out of state for an abortion -- well, it just kind of seemed like there was a lot of subtle pressure toward abortion and people weren't coming away with decisions they felt exactly proud of. and i do think a lot of this pressure to abort "not perfect" babies has to do with the bottom line. i still worry that our gov's concern about who are children can be to the children's detriment. i came away from the whole down amnio scenario feeling deeply sceptical about government motives in dna testing. -
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Re: infant DNA collection -- wtf?!
Wed, May 14, 2008 - 12:23 PM"about who are children"
er, about who our children are...
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Re: infant DNA collection -- wtf?!
Sun, June 8, 2008 - 8:14 PMI think I may have mentioned this to you in another post, but I had a friend who's kid had the extra chromosones and was completely normal. Facial features, mental and emotional intelligence and stability, turns out the dad also had extra chromosones, and he was totally normal. The doctors insisted that the child had down syndrome before it was born and they chose not to abort. Just goes to show, the less we have to do with them the better.
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